April 2015: For details of the Optimal Management of Patients with Graves' Orbitopathy: Non-Specialist Assessment and Referral Pathways which have been accepted by the RCP Concise Guidelines Programme please click here.

In May 2014 TEAMeD produced its first report. Click here for the executive summary and here for the full report.

Aims

The aims of the group are to improve the patient experience by seeking to put in place measures to ensure:

  • access to information
  • early diagnosis: halving the time between diagnosis and referral
  • appropriate treatment: halving the time between referral and treatment
  • access to skilled professionals: access to high standards of joint care from endocrinologists and ophthalmologists

What TEAMeD representatives are doing

To raise awareness of TED

  • TEAMeD represented at Rare Disease Day Parliamentary Reception on 23 Feb 2011 in London and Wales
  • Representation at conferences such as British Endocrine Socities, British OculoPlastic Surgery Society, Royal College of General Practitioners
  • Creation of flyers and poster awareness tools for distribution
  • Providing information to medical community—endocrinologists, ophthalmologists, optometrists, general practitioners, via publications, training courses, conferences
  • Development of a patient questionnaire to aid in diagnosis and create awareness of symptoms in patients
  • Provide information in BTF and TEDct patient literature, websites, etc
  • Involvement in a Thyroid Eye Disease Day for patients, December 2012, organised by the NIHR Moorfields Biomedical Research Centre (BRC) in partnership with the British Thyroid Foundation and the Thyroid Eye Disease Charitable Trust (TEDct).

To establish pathways for referral and care

  • Develop guidelines focusing on pathways for early referral of TED to specialist centres
  • Create 'Early Recognition and Referral Questionnaire" for health care workers and reduce delays in referral
  • Conduct a literature search on current best practice
  • Involvement in commissioning of services for patients with TED in England

To reduce impact of TED

  • Endocrine management – development of audit tool for use in tertiary centres to monitor referral delays, pilot and link audit tool to SfE audit of TED around I-131 therapy
  • Provide information on TED and the risk of radioactive iodine treatment
  • Create awareness of risks of smoking and TED
  • Provide information about resources for quitting smoking

To assure quality of care

  • Patient questionnaire to aid in diagnosis and create awareness of symptoms in patients
  • Disseminate information about patient experiences in care pathways
    Development of audit tools for use in management of TED to reduce referral delays

To improve patient lives

  • Provide information to the public about TED and symptoms to patients particularly at risk through an awareness campaign aimed at medical community and patients
  • TEAMeD to be a conduit between all skilled professionals involved in treating patients with TED including endocrinologists and ophthalmologists, and other disciplines: orthoptics, oncology (for radiotherapy), ENT (who help with endoscopic medial wall decompressions) and endocrine surgeons
  • Involvement in the Sight Loss and Vision Priority Setting Partnership (PSP) Final Prioritisation Workshop for Ocular Inflammatory Diseases organized by Fight For Sight in conjunction with the James Lind Alliance to establish the top 10 priorities for Ocular Inflammatory Disease

To raise funds for thyroid eye disease research

Involvement in raising funds for research into thyroid eye disease on the Carrots NightWalks 2013 leading to the Fight for Sight/British Thyroid Foundation and Thyroid Eye Disease Charitable Trust Small Grant Award for research into thyroid eye disease