October 2015 - The following are research projects involving young people with thyroid disease in the UK. This is not a comprehensive list and there are other projects underway or being planned.

 

The National BSPED Thyrotoxicosis Study

This study is looking at how best to administer anti-thyroid drugs (usually carbimazole in the UK) to children and adolescents with thyrotoxicosis. Patient recruitment to this study was slow at first but accelerated following a grant from the British Thyroid Foundation (BTF) in 2008. Over 80 patients have been recruited from around 15 centres in England, Scotland and Wales. The study finishes in 2015 and data analysis will soon commence with the results of the study expected during 2016.

Contact: tim.cheetham@nuth.nhs.uk

The British Paediatric Surveillance study of congenital hypothyroidism (CHT)

This study has been looking at the incidence of CHT in the UK (how common it is) and other important issues such as what proportion of cases are temporary as opposed to permanent. The study will also provide informastion about how paediatricians manage the condition in the UK. The study is supported by the Royal College of Paediatrics and Child Health (TCPCH) and received backng from the BTF. We expect that results from this study will start to appear in the medical literarture in 2016-2017 which will be very exciting.

Contact: Rachel Knowles  r.knowles@ich.ucl.ac.uk and Juliet Oerton joerton@ich.ucl.ac.uk

http://newbornbloodspot.screening.nhs.uk