Thank you to all those members who replied to our Member Feedback Survey. Over 250 members responded to tell us about their experiences of BTF’s services and included suggestions and comments as to how we can improve. We also had many responses from non-members who found the survey on the BTF website.
The results have helped the BTF Trustees develop a strategic plan for the BTF, and this will provide the direction for the charity over the next three years.
The feedback established that the top three priorities are:
- to do more to raise the profile of thyroid disorders with GPs
- continue to fund research which will help patients in future
- to provide more patient information.
Some members asked that the BTF newsletter should include more medical letters and practical information and we've therefore made changes to the newsletter to reflect these requests.
Others raised questions about BTF’s core services and so here’s a reminder of the various ways we can support you:
- if you have a medical query you can write to us by letter or email (firstname.lastname@example.org) and your question will be answered by one of our medical advisers;
- a list of telephone contacts (BTF volunteers who can take your calls and can offer support and information) is on the back of each newsletter and on our website;
- the recently revised and updated BTF leaflets are now available online to read, download and print;
- if you would like to find out about how to leave a legacy to BTF please follow this link Legacy Giving;
- to join the BTF Lottery follow this link.
We are grateful to everyone who took the time to respond to the survey. All contributions were valuable and help us review and understand the service we provide. We are committed to providing practical and reliable support to thyroid patients now in years to come and will continue to listen to the feedback we are given.
Finally we've included two comments from members who wrote about what BTF meant to them:
"Being told I had an under-active thyroid and would need to take medication for the rest of my life was unnerving. The BTF information was so helpful and reassuring. Please be there for all the next patients who get that diagnosis."
“When I was first diagnosed with Graves’ disease it was very frightening – I’d never heard of it and my GP provided very limited information, if at all. Finding BTF online, and most crucially your excellent free information leaflets, the telephone helpline of people who understood and knew something about it, and the newsletter were an absolutely invaluable resource, a lifeline. I am forever grateful for that early help when there was no other. Thank you and please keep up the valuable work!”